Amyotrophic lateral sclerosis

What is amyotrophic lateral sclerosis?

ALS (amyotrophic lateral sclerosis) is a degenerative disorder affecting upper motor neurons in the brain and lower motor neurons in the brainstem and spinal cord. Symptoms include progressive weakness, atrophy, fasciculation, dysphagia, and eventual paralysis of respiratory function.

How do members experience amyotrophic lateral sclerosis?

Top 5 symptoms reported by people with amyotrophic lateral sclerosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for amyotrophic lateral sclerosis*

*Data from patients with amyotrophic lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with amyotrophic lateral sclerosis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Rilutek)
Perceived effectiveness
for amyotrophic lateral sclerosis (56 evaluations)
Side effects
spasticity tiredness
Total evaluations
56
Tried for
amyotrophic lateral sclerosis (97)
Treatment

(Radicava)
Perceived effectiveness
for amyotrophic lateral sclerosis (11 evaluations)
Side effects
paralysis of legs
Total evaluations
11
Tried for
amyotrophic lateral sclerosis (30)

*Data from patients with amyotrophic lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has amyotrophic lateral sclerosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 118
30s 455
40s 986
50s 2,352
60s 3,719
70+ 4,787

Distribution of sex

Sex

Sex Proportion # of patients
Male 6,388
Female 5,252
Learn more about our community’s experience with amyotrophic lateral sclerosis.

Talk to people with amyotrophic lateral sclerosis

14,864

14K+

members say they have this condition

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Neurological and Brain,ALS/MND

Learn from others like you living with amyotrophic lateral sclerosis.
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