What is melorheostosis?
Melorheostosis is a rare developmental bone disorder thought to be caused by a defect in the LEMD3 gene. It may be asymptomatic, but pain, stiffness with limitation of motion, leg-length discrepancy and limb deformity may occur.
How do members experience melorheostosis?
Top 5 symptoms reported by people with melorheostosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for melorheostosis*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have melorheostosis through your profile, those stories and data appear here too.
Who has melorheostosis on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 4 | |
| 40s | 2 | |
| 50s | 4 | |
| 60s | 1 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 8 |
Learn more about our community’s experience with melorheostosis.
Talk to people with melorheostosis
14
14
members say they have this condition
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Muscles, Bones and Joints
Learn from others like you living with melorheostosis.
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