What is Dravet's syndrome?
Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a rare disorder caused by a genetic mutation in a protein that regulates electrical activity in the brain. People with SMEI experience almost every type of seizure known.
How do members experience Dravet's syndrome?
Top 5 symptoms reported by people with Dravet's syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Dravet's syndrome*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Dravet's syndrome through your profile, those stories and data appear here too.
Who has Dravet's syndrome on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 8 | |
| 20s | 7 | |
| 30s | 6 | |
| 40s | 9 | |
| 50s | 8 | |
| 60s | 4 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 20 | |
| Female | 24 |
Learn more about our community’s experience with Dravet's syndrome.
Talk to people with Dravet's syndrome
58
58
members say they have this condition
Join
Neurological and Brain,Epilepsy
Learn from others like you living with Dravet's syndrome.
Last updated: