Estimated reading time: 5 minutes
Medically reviewed and verified by Kate Burke, MD, MHA
Most people struggle with having an open and honest dialogue with their doctor. Going into the office and talking about sensitive medical information or new symptoms is hard! Rest assured, if this is something you have had an issue with, you are not alone. Add on to that, being newly diagnosed with a condition diabetic macular edema (DME) is also overwhelming. On top of learning about the condition, you may struggle with how to talk to your doctor about your treatment options. Getting a positive and trusting relationship with your doctor is key to managing your DME effectively. Wondering how you can approach this? PatientsLikeMe has a guide to help you start those important conversations with confidence.
Why Talking to Your Doctor Can Be Hard
Many people feel unsure about discussing their health with their doctor. Common barriers include a fear of asking "dumb" questions, being overwhelmed by information, or feeling rushed. Understanding these challenges can help you prepare and make the most of your time with your doctor. If you have struggled to talk openly with doctors in the past, here are some tips to build trust and confidence.
Prepare for Appointments
- Write down your questions and concerns ahead of time.
- Bring a list of your medications.
- Ask a family member or friend to attend the visit, take notes and help with questions.
Be Honest About Your Challenges
- Let your doctor know if you are struggling with managing your condition or in keeping up with appointments.
- Ask your doctor if you can record the visit so you can replay the information again for yourself and your family.
- Share any fears or anxieties about treatments.
Ask for Clarification
- If you do not understand something, ask your doctor to explain it in simpler terms.
- Repeat back what you have heard to make sure you understand.
Bring a Support Person
- A family member or friend can help you take notes or ask questions.
Follow Up
- Keep track of your symptoms and progress.
- Reach out between visits if new concerns come up.
Understanding DME
To be prepared to talk with your doctor, it also helps to know the basics of how DME is treated. Doctors typically approach DME in two ways. The first is by addressing the underlying cause of the condition. Managing high blood sugar, blood pressure, or cholesterol are key steps here. This helps prevent further damage to your eyes. Next, they will focus on healing the retina. Depending on the type of DME, you may need treatments including anti-VEGF shots, laser surgery, corticosteroids and others based on your specific case.
Common Questions on DME Treatment
When talking to your doctor, asking the right questions can make all the difference. Here are some examples to guide your conversation.
What is causing my DME, and how can I address it?
- Ask your doctor how your diabetes or other conditions contribute to your DME.
- Talk about ways to lower your blood sugar, blood pressure, and cholesterol.
What treatment options do I have, and how do they work?
- Ask about anti-VEGF shots which help reduce blood vessel leakage.
- Ask about laser surgery or corticosteroids if anti-VEGF treatments are not enough.
- Understand the benefits and risks of each option.
How will treatment affect my vision?
- Ask about the likelihood of improving or stabilizing your vision.
- Talk about potential side effects, like temporary blurriness after injections.
What symptoms should I watch for?
- Ask what changes in vision, like dark spots, floaters, or light sensitivity, could mean you are healing.
- Learn when to call your doctor about sudden changes.
How often will I need treatment or follow-up visits?
- Anti-VEGF injections often require monthly visits for the first few months, with fewer over time. Laser treatments might need only one or two sessions.
- Ask about a schedule that fits your condition and lifestyle.
Emotional Barriers
DME can feel like a heavy burden, especially if you are already managing diabetes. The first thing you need to do is acknowledge your feelings. It is normal to feel frustrated or anxious! Talking to a counselor or support group can help. Next, focus on what you can control. Small changes, like improving your diet or going to appointments, can make a big difference. Finally make sure you are celebrating the progress you make! Each step in managing your DME is a success.
By staying informed and advocating for yourself, you can take charge of your DME treatment. With the right support from your doctor and a proactive approach, you can protect your vision and improve your quality of life. Take that first step today by scheduling a conversation with your doctor.
PatientsLikeMe is your gateway to taking control of your health, offering a supportive community and powerful tools to manage your wellness journey. By joining PatientsLikeMe, you can connect with others who understand your experiences and provide invaluable advice and encouragement. Track your symptoms, treatments, and outcomes with ease, allowing for better informed health decisions and improved communication with your healthcare team.