A clinical trial is a research study that tests a medical, surgical, or behavioral intervention to find out whether they are safe and effective! Because of clinical trials we now enjoy modern conveniences like pacemakers and the covid vaccine. You may be in a position to participate in one, but are not sure of the questions to ask before going in. That is perfectly normal, and PatientsLikeMe is here to address your concerns. In this overview, we will look at general questions you should ask for any clinical trial, as well as specific concerns for people with Lupus who may be given an opportunity to participate in a more targeted research study.
Design of the Clinical Trial
- What is the purpose of this trial, and how will it help people?
- Why do researchers believe this new treatment might be effective?
- What kinds of patients will be in the clinical trial?
- How long will the trial take?
Eligibility Requirements
- Why is this clinical trial a good fit for me?
- What are my treatment options if I don’t join this trial?
- Are there other clinical trials that might help me?
Potential Benefits and Risks
- How could this clinical trial help me if I join?
- What are the possible risks?
- How will I know if the treatment is working?
Practical Concerns
- What will I have to do if I join?
- Will I have to change my daily activities or my diet?
- Who will be in charge of my care?
- Who will pay for treatment?
- If I have questions, whom can I contact?
Lupus Participants
Lupus continues to be heavily studied, as doctors are looking for new forms of treatment. If you have lupus, you may be interested in taking part! Clinical trials can be a fantastic way to learn more about the ever expanding world of care. Before you dive in, here are some specific questions you may have that would be good to consider.
- How do I find lupus trials near me?
- There are a number of search tools you can use. The NIH keeps an updated list of all ongoing trials, searchable here. There are other search options as well.
- PatientsLikeMe is currently recruiting for clinical study volunteers, express your interest today!
- What is the goal of a lupus trial?
- Every clinical trial sets a goal before they start. Some are interested in finding new treatment options for specific symptoms, while others want to study how the disease progresses.
- Who can join clinical trials for lupus?
- Trials have eligibility requirements depending on their goals. Certain people can be excluded because of disease severity, location, age, or current medications. This will change trial to trial.
- What treatments are currently in development?
- There are quite a few! They range from managing symptoms and side effects to looking at reducing organ damage.
- What are the benefits and risks?
- You will get access to potential new treatments, receive care from experts, and have the chance to push research forward. There is the risk that the treatment won't work, or that you might experience unwanted side effects.
- How can I find more support?
- There are a number of fantastic resources out there. Support groups allow you to connect with other patients, caregivers, and friends of people with the condition.
PatientsLikeMe will be working to bring clinical trial opportunities to our lupus members in the coming weeks! Keep your eyes peeled for news and updates. If you're not a member and want to receive updates about trials in your area, sign up for a free account.