May is ALS awareness month and this year, we’re joining the ALS Therapy Development Institute to share how ALS makes us feel, #InThreeWords.
Sad, determined, frustrating as hell – just a few of the words PatientsLikeMe staff chose. Want to get involved? Check out what PatientsLikeMe staff had to say, including a video from our co-founder, Jamie Heywood.
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PatientsLikeMe co-founder Jamie Heywood[/caption]
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Jenna Tobey, Manager, Customer Strategy and Value[/caption]
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Kate Brigham, Director, Design[/caption]
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Margot Carlson Delogne, VP, Communications[/caption]
And, check out 2016-2017 Team of Advisor member Cris’ three words:
Let’s spread the word and end ALS together.
Share this post on Twitter and help spread the word.






What are ALS members saying in the forum?
“Enraged, alone, afraid”
- Kzueger
“Uninvolved, sorrowful, useless”
“Frustrated, compassionate, claustrophobic.”
- jimig
“Frustrated that I can't stop this disease, overwhelmed at times by the losses created by ALS and grateful for kindness of others”
“Helpless, angry, pissed off.”
- MsJLB

