What is vanishing white matter disease?
Vanishing White Matter Disease (VWM) is an inherited condition; it is a progressive neurological deterioration of the myelin sheath (white matter). It allows for electrical signals to communicate between neurons. Decreased electrical signals disrupt the proper functioning of the nervous system.
How do members experience vanishing white matter disease?
Top 5 symptoms reported by people with vanishing white matter disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for vanishing white matter disease*
Who has vanishing white matter disease on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 2 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 4 | |
| 50s | 3 | |
| 60s | 3 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 4 | |
| Female | 9 |