What is Tolosa-Hunt syndrome?
Tolosa Hunt Syndrome is characterized as painful eye movements due to weakness of eye muscles accompanied by severe periorbital headaches. The underlying cause is an idiopathic granulomatous inflammation of the cavernous sinus.
How do members experience Tolosa-Hunt syndrome?
Top 5 symptoms reported by people with Tolosa-Hunt syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Tolosa-Hunt syndrome*
Who has Tolosa-Hunt syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 2 | |
| 60s | 1 | |
| 70+ | 2 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 2 | |
| Female | 5 |