What is porphyria cutanea tarda?
Porphyria cutanea tarda is a blistering skin condition caused by a substantial deficiency of the liver enzyme known as uroporphyrinogen decarboxylase (UROD). Skin changes generally occur on sun-exposed areas such as the face, neck, dorsal sides of fingers and hands.
How do members experience porphyria cutanea tarda?
Top 5 symptoms reported by people with porphyria cutanea tarda*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for porphyria cutanea tarda*
Who has porphyria cutanea tarda on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 5 | |
| 40s | 1 | |
| 50s | 6 | |
| 60s | 5 | |
| 70+ | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6 | |
| Female | 16 |