What is Pierre Robin syndrome?
Pierre Robin syndrome (PRS) is a genetic condition affecting facial features. It is characterized as a smaller than normal jaw, an underdeveloped tongue that falls back in the throat, and a cleft soft palate. Often, this can lead to difficulty with breathing and feeding.
How do members experience Pierre Robin syndrome?
Top 5 symptoms reported by people with Pierre Robin syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Pierre Robin syndrome*
Who has Pierre Robin syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 1 | |
| 30s | 2 | |
| 40s | 2 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 0 | |
| Female | 6 |