What is phocomelia?

Phocomelia syndrome is characterized as a rare birth defect affecting the extremities. Arms and legs may be extremely shortened or absent, or digits the hands or feet may be fused.

How do members experience phocomelia?

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.