What is Kearns-Sayre syndrome?
is a rare neuromuscular disorder with onset usually before the age of 20. It is the result of abnormalities in the DNA of mitochondria - small rod-like structures found in every cell of the body that produce the energy that drives cellular functions.
How do members experience Kearns-Sayre syndrome?
Top 5 symptoms reported by people with Kearns-Sayre syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Kearns-Sayre syndrome*
Who has Kearns-Sayre syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 0 | |
| 40s | 0 | |
| 50s | 2 | |
| 60s | 2 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 5 |