What is cystinuria?
Cystine is an amino acid that is normally filtered into the urine or reenters the bloodstream. People with cystinuria have a genetic defect that prevents this process from occurring. Cystinuria is a genetic disorder characterized as an increased amount cystine in the urine.
How do members experience cystinuria?
Top 5 symptoms reported by people with cystinuria*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for cystinuria*
Who has cystinuria on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 4 | |
30s | 4 | |
40s | 2 | |
50s | 3 | |
60s | 3 | |
70+ | 2 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 5 | |
Female | 13 |