What is Castleman's disease?

Castleman disease is rare disorder classified as a lymphoproliferative disorder characterized by non-cancerous growths (tumors) that may develop in the lymph node tissue at a single site (unicentric) or throughout the body (multicentric).

How do members experience Castleman's disease?

Top 5 symptoms reported by people with Castleman's disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Castleman's disease*

Who has Castleman's disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 2
40s 2
50s 6
60s 1
70+ 3

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 12