What is Caroli's disease?
Caroli's disease is a rare congenital disorder of the intrahepatic bile ducts. Simple Caroli disease is characterized by enlargement of the bile duct alone while Complex Caroli disease involves fibrosis of the liver and portal hypertension (high blood pressure in the portal vein).
How do members experience Caroli's disease?
Top 5 symptoms reported by people with Caroli's disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Caroli's disease*
Who has Caroli's disease on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 4 | |
| 30s | 6 | |
| 40s | 12 | |
| 50s | 9 | |
| 60s | 6 | |
| 70+ | 5 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 9 | |
| Female | 34 |