What is Alstrom syndrome?
Alström syndrome is characterized as a gene mutation of the ALMS1 gene. The condition affects multiple functions of the body including hearing, vision, heart disease, liver function, and the endocrine system.
How do members experience Alstrom syndrome?
Top 5 symptoms reported by people with Alstrom syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Alstrom syndrome*
Who has Alstrom syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 1 | |
| 40s | 3 | |
| 50s | 1 | |
| 60s | 0 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 2 |