What is adrenomyeloneuropathy?

Adrenomyeloneuropathy, a milder form of adrenoleukodystrophy (X-ALD), is a rare inherited disorder that begins in adolescence or adulthood. It is characterized by spinal cord dysfunction with progressive stiffness and weakness of the legs, abnormal sphincter muscle control, and sexual dysfunction.

How do members experience adrenomyeloneuropathy?

Top 5 symptoms reported by people with adrenomyeloneuropathy*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for adrenomyeloneuropathy*

Who has adrenomyeloneuropathy on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 7
40s 7
50s 12
60s 2
70+ 1

Distribution of sex

Sex

Sex Proportion # of patients
Male 22
Female 7