What is adrenomyeloneuropathy?
Adrenomyeloneuropathy, a milder form of adrenoleukodystrophy (X-ALD), is a rare inherited disorder that begins in adolescence or adulthood. It is characterized by spinal cord dysfunction with progressive stiffness and weakness of the legs, abnormal sphincter muscle control, and sexual dysfunction.
How do members experience adrenomyeloneuropathy?
Top 5 symptoms reported by people with adrenomyeloneuropathy*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for adrenomyeloneuropathy*
Who has adrenomyeloneuropathy on PatientsLikeMe?
Age | Proportion | # of patients |
---|---|---|
<20 | 0 | |
20s | 1 | |
30s | 7 | |
40s | 7 | |
50s | 12 | |
60s | 2 | |
70+ | 1 |
Distribution of sex
Sex | Proportion | # of patients |
---|---|---|
Male | 22 | |
Female | 7 |