What is primary lateral sclerosis?
Primary lateral sclerosis (PLS) is a rare neuromuscular disease characterized by progressive muscle weakness in the voluntary muscles. PLS belongs to a group of disorders known as motor neuron diseases.
How do members experience primary lateral sclerosis?
Top 5 symptoms reported by people with primary lateral sclerosis*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Balance problems
How bad it is
What people are taking for it
Common symptom
Stiffness/spasticity
How bad it is
What people are taking for it
Common symptom
Slow speech (bradyarthria)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for primary lateral sclerosis*
*Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with primary lateral sclerosis*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for primary lateral sclerosis (2 evaluations)
Side effects
Total evaluations
2
Tried for
primary lateral sclerosis
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
primary lateral sclerosis
(2)
*Data from patients with primary lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has primary lateral sclerosis on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 8 | |
| 30s | 14 | |
| 40s | 56 | |
| 50s | 143 | |
| 60s | 247 | |
| 70+ | 363 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 339 | |
| Female | 492 |