Systemic lupus erythematosus

What is systemic lupus erythematosus?

Systemic lupus erythematosus is a chronic autoimmune disorder primarily involving connective tissue. It affects multiple systems including the skin, joints, kidneys, lungs, heart, and the peripheral blood cells. Treatments vary according to the area affected and may include drugs or supportive care.

How do members experience systemic lupus erythematosus?

Top 5 symptoms reported by people with systemic lupus erythematosus*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for systemic lupus erythematosus*

*Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with systemic lupus erythematosus*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Plaquenil)
Perceived effectiveness
for systemic lupus erythematosus (2 evaluations)
Side effects
Total evaluations
2
Tried for
systemic lupus erythematosus (34)
Treatment

(Benlysta)
Perceived effectiveness
for systemic lupus erythematosus (6 evaluations)
Side effects
anaphylaxis
Total evaluations
6
Tried for
systemic lupus erythematosus (15)
Treatment

(Prednisone Intensol)
Perceived effectiveness
for systemic lupus erythematosus (2 evaluations)
Side effects
Total evaluations
2
Tried for
systemic lupus erythematosus (9)
Treatment

(Apo-Methotrexate)
Perceived effectiveness
for systemic lupus erythematosus (8 evaluations)
Side effects
fatigue
Total evaluations
8
Tried for
systemic lupus erythematosus (8)
Treatment

(Imuran)
Perceived effectiveness
for systemic lupus erythematosus (5 evaluations)
Side effects
diarrhea low white blood cell count (leukopenia) 2 more
Total evaluations
5
Tried for
systemic lupus erythematosus (5)

*Data from patients with systemic lupus erythematosus, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has systemic lupus erythematosus on PatientsLikeMe?

Age

Age Proportion # of patients
<20 28
20s 590
30s 2,950
40s 7,699
50s 11,590
60s 8,149
70+ 3,072

Distribution of sex

Sex

Sex Proportion # of patients
Male 1,229
Female 33,266
Learn more about our community’s experience with systemic lupus erythematosus.

Talk to people with systemic lupus erythematosus

38,664

38K+

members say they have this condition

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Learn from others like you living with systemic lupus erythematosus.
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