What is Niemann-Pick disease?
Niemann-Pick disease is an inherited condition involving lipid metabolism, which is the breakdown, transport, and use of fats and cholesterol in the body. Symptoms are related to the organs in which lipids accumulate.
How do members experience Niemann-Pick disease?
Top 5 symptoms reported by people with Niemann-Pick disease*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Pain
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Buoy Health’s symptom checker.
Top treatments taken by people for Niemann-Pick disease*
We currently don't have enough shared data that is made public for this condition.
Let's build this page together! When you share what it's like to have Niemann-Pick disease through your profile, those stories and data appear here too.
Who has Niemann-Pick disease on PatientsLikeMe?
Age
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 9 | |
| 20s | 8 | |
| 30s | 6 | |
| 40s | 8 | |
| 50s | 6 | |
| 60s | 2 | |
| 70+ | 1 |
Distribution of sex
Sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 21 | |
| Female | 21 |
Learn more about our community’s experience with Niemann-Pick disease.
Talk to people with Niemann-Pick disease
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