Pulmonary fibrosis

What is pulmonary fibrosis?

Pulmonary fibrosis is a chronic, progressive fibrosing interstitial pneumonia of unknown cause and results in the lungs becoming thick and stiff, or scarred, over time. PF may be caused by medications, exposures, or underlying diseases of the autoimmune system.

How do members experience pulmonary fibrosis?

Top 5 symptoms reported by people with pulmonary fibrosis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Are you experiencing one or more of these symptoms? Check your symptoms and clarify your options for care using

Top treatments taken by people for pulmonary fibrosis*

*Data from patients with pulmonary fibrosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with pulmonary fibrosis*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Ofev)
Perceived effectiveness
for idiopathic pulmonary fibrosis (7 evaluations)
Side effects
diarrhea muscle fatigue
Total evaluations
7
Tried for
idiopathic pulmonary fibrosis (10) hypersensitivity pneumonitis (1)
Treatment

(GNC N-Acetyl Cysteine)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis (2)
Treatment

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis (1)
Treatment

(transtracheal oxygen)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
idiopathic pulmonary fibrosis (1)
Treatment

(Esbriet)
Perceived effectiveness
for idiopathic pulmonary fibrosis (2 evaluations)
Side effects
Total evaluations
2
Tried for
idiopathic pulmonary fibrosis (1)

*Data from patients with pulmonary fibrosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has pulmonary fibrosis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 42
30s 212
40s 499
50s 914
60s 1,509
70+ 4,941

Distribution of sex

Sex

Sex Proportion # of patients
Male 3,594
Female 4,645
Learn more about our community’s experience with pulmonary fibrosis.

Talk to people with pulmonary fibrosis

9,157

9K+

members say they have this condition

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Lungs and Respiratory

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